Showing posts with label DOC. Show all posts
Showing posts with label DOC. Show all posts

Tuesday, February 4, 2014

Diabetes Lifehacks.

One of the benefits of the DOC (diabetes online community) is that we get to share the tips and tricks that only a person really living with it would know, in an effort to make our diabetes management a little bit easier. It's group problem-solving at its finest: crowdsourced answers to common challenges.

To use another buzzword, a lifehack can be defined as an "uncommon solution to common problems", or "unusual ways of using everyday objects to make life easier".

Since Googling "diabetes lifehacks" didn't bring up much for me in the way of search results (although I did find this thread on TuDiabetes), I'm going to do what I can to fix that problem with this post.

(Important note: nothing here can be considered medical advice, and if you're unsure about something, check with your doctor first. Let's approach this as, "this is what I do" and not "this is what you should do". If you're sharing someone else's tip(s), please credit them!)




Here are some of the ones I'm aware of (and yeah, a lot of them are CGM and insulin pump-centric).

Wondering how to get Dexcom sensors to last longer? This is at least a two-part answer. The first part is getting the receiver to take readings again: you can either find "stop sensor" in your menu, or wait until the receiver tells you that the 7-day period has expired (and it stops taking readings on its own). After that sensor has "stopped", go back to your menu and select "start stensor". After another two-hour period, you can calibrate (by entering two fingerstick results) and continue on, with the receiver believing you're using a fresh sensor, when it really is the one you were already wearing.

The second part has to do with the actual adhesive - it's likely not going to stay stuck to you for a full seven days on its own. Use a medical tape like Opsite Flexifix (a DOC favorite), IV3000, or Tegaderm. Find tips here, here and here on how others use this tape.

If you have trouble remembering how long you've had your Dexcom sensor on, or when the 7-day expiration will happen, write the date and time of your sensor insertion on the sensor's packaging and hang onto it (this way you keep the sensor's serial number on hand too, in case you'd need it for calling Dexcom about sensor issues), or take a picture of it with your iPhone or similar device (the date you took the photo will be saved that way).



If you're pumping with a t:slim and wrestle with keeping tubing and the pump upright during a prime sequence, kitchen cabinet knobs are your friend.

Changing the battery out of an Animas Ping insulin pump without using a coin can still happen if you're wearing a medical ID bracelet.




If you need to disguise an insulin pump/CGM receiver/tube of glucose tabs under a dress, try making your own garter using thigh-high hose, sew a pocket into the dress, or maybe sport some stretchy shorts underneath. In a pinch? Baby sock + safety pin = you can wear your pump just about anywhere on your person.

Can't hear your Dexcom alarms while you're sleeping? The ol' glass and coins trick may work.

Remembering to grab all of the right insulin pump cartridge/site change-out parts become easier when you use small Ziploc bags for the parts. Especially helpful if you'll need to do a change-out away from home and tend to forget parts (cough, me, all the time) - just grab one baggie and one vial of insulin and you'll be good to go.



If you're on MDI (multiple daily injections) and don't want to mix up insulins whose packaging may be similar, use something like colored duct or washi tape around the outside of the vial (or pen!) to distinguish them. (You can also use washi tape to dress up a glucose meter!)

(Speaking of true hacking... check out this Dexcom DIY set-up for monitoring someone in another room. Whoa.)

Need a small sharps container while you're traveling? An empty glucose tab jar or eye makeup remover wipes container packs nicely.



Empty test strip tubes are also a good place to stash the used test strips in your meter kit - use a sticker on the lid (or marker on the labeling) to tell them apart.

Infusion sites can be dressed up with the help of a little nail polish and creativity:

Images courtesy of Amy Dooley; D-Momma to Lauren


What are your favorite diabetes lifehacks? Please share them in the comments section!

Saturday, January 25, 2014

In Your Pancreas.

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I feel so lost, sometimes
Days pass, and this insulin fills my cart
When I want to exercise
I end up eating carbs
Every time I test, I go
"There must be a better way to know"

My low symptoms; will they return?
New devices I'll have to learn
They make a noise I try to hide
I struggle with how it feels on the inside

But I'm fine
Beta cells might 
Have all died
(But who's complete?)
I'll be fine
I see a closed loop, and a thousand researchers
(Cure in five?)
The resolution in these badass advocates
Okay, not fine
But I see the light and the heat
In these guys
No math, please, while we eat
We want to have the chance
To be complete in our eyes

I don't like to feel so much pain
Test strips, wasted - and this error 4 keeps beeping at me
I get so tired, working so hard for my survival
I wish for a time where I can just be alive

To my eyes
I can't believe
Over twenty five
Years with this... sheet
I see a better answer to Google searches
No disguise!
We share ourselves; all the low-carb lunches
(Or french fries)
We tweet it all, and we see
We're not alone; on the same team
It helps us feel more complete
The same team; the same team
The burden is no longer all mine
Not all mine, not all mine
Not all mine, not all mine




Tuesday, August 28, 2012

The Bright Side (Of Diabetes).

I was pretty crabby yesterday, so, like I do, I decided to turn it around by making a list of things to be happy about. Or, at least, things that can be considered "the bright side" of having diabetes.

Do any of these make YOUR list?


About those scarves: I bought those from Hanky Pancreas; they were not freebies, and no one asked me to mention them. They also aren't cheap (around $40 a pop), but for good reason - they are extremely well-made and cleverly designed. I am in love with mine.

Wednesday, July 25, 2012

You're Beautiful.

Yesterday, my friend Wendy shared something about her young daughter on Facebook.


And from yesterday until a few minutes ago, Sara, Jess, and I aggregated some of those affirmations... and now we're sharing them.

I WEAR GLASSES AND A PUMP AND MY FACE
ONLY GETS STUCK LIKE THIS SOMETIMES

For Wendy's daughter (who was - coincidentally? - diagnosed seven years ago TODAY), and anyone else who has to wear a lot of hardware: you can do this, and you can ROCK IT.


Thursday, July 19, 2012

Talking With Tony.

Tony Rose was kind enough to invite me on his podcast this week, and in case you'd like to hear me babble on about about things like diabetes camps, celebrating diaversaries, feeling angry about diabetes, Friends For Life and the You Can Do This Project (because I obviously haven't talked about those last two things enough), I have a link for you: http://bloggingdiabetes.com/2012/07/bdp-049-interview-with-kim-vlasnik-cgm-data-and-diabetes-news/

I also mention fanny packs. You've been warned.


Monday, May 7, 2012

Diabetes Blog Week - Are You In?

Head over to Bittersweet Diabetes to find out all about the 3rd annual Diabetes Blog Week! It begins a week from today, and Karen has made it super easy to participate by giving us a list of topics ahead of time, an easy-to-use form to sign yourself up with, and link lists so you can see where you can read each day's posts. Don't have a blog? Start one on Blogger or Wordpress, or use the built-in blogging function on one of the diabetes communities like TuDiabetes, Juvenation or Diabetes Daily.

What are you waiting for? Go sign up! (And big thanks to Karen for once again organizing this fantastic way to connect with the diabetes community!)


Wednesday, April 4, 2012

#TwoBits: Arden's Day Gives and You Can Do This.

Hat tip to Bennet at Your Diabetes May Vary for the #TwoBits idea; it's a blogging format that allows you to do a quick post (much as a Wordless Wednesday might work - big punch in a tiny package) pointing people to things going on in the DOC. Here's mine for today:
  • If you aren't familiar with Scott Benner from Arden's Day, go fix that right now. Scott is the parent of Arden - a child with type 1 diabetes - and his family is doing great things to help people with diabetes. Namely, they've filed paperwork to incorporate "Arden's Day Gives", a non-profit that will assist children who are financially unable to obtain insulin pumps and CGMs. Get the lowdown here: http://www.ardensday.com/main/2012/4/4/ardens-day-gives-application-for-incorporation.html
  • This is a bit of self-promotion, but in case you missed the tweets/Facebook post/blog post yesterday, the You Can Do This Project has a new look! Update your blog buttons, and take a look at where we're currently being featured (hint: it's really exciting): http://youcandothisproject.com/2012/04/03/new-look-more-to-come/

Monday, April 2, 2012

Medtronic Diabetes Advocate Forum: A Few Visuals.

I spent the past four days in the Los Angeles area in order to attend the 2nd annual Medtronic Diabetes Advocate Forum, and I'm totally exhausted.

You'll have to give me a bit of recovery time before I go into details, but in the meantime, here are a few snapshots. (I'm also working on getting some video up - bear with me?)


DSMA Live presents Manny Hernandez with the first DSMA Salutes award for his advocacy work in the diabetes community.
DSMA Live - if you missed the episode, visit www.dsmalive.com.

George Simmons, Kelly Kunik and Kelly Close lead a group discussion.
Group discussion led by George, Kelly and Kelly.

What heaven looks like.
Well of course we did.

Santa Monica Pier
Santa Monica Pier.


How did the Getty Museum know to mark this hallway just for us?
I guess we were meant to be at the Getty Museum? (L to R: Bennet Dunlap, Kelly Kunik,
Leighann Calentine, Sara Nicastro, Karen Graffeo, Mike Hoskins, and part of
Jess Collins' head.) 
Van Gooooooogh!
Van Gogh! My hero! Also, neveryoumind the rain-induced mess of a hairdo I've got going.

Blue Friday!! (photo credit: Cherise Shockley) L to R: Kelly Close,
Mike Hoskins, Karen Graffeo, Leighann Calentine, me (Kim Vlasnik),
Sara Nicastro, Scott Johnson, Amanda Sheldon (Medtronic), Jess Collins,
Sarah (Sugabetic), Cherise Shockley
Disclosure Time: Medtronic paid for my flights, meals and ground transportation during the Forum Thursday evening and Friday. I, and others, chose to stay an extra day and were on our own for costs incurred during that time. We were not paid to attend, nor are we obligated to write about the Forum. 

Sunday, March 25, 2012

1 Sweet Life.

My late teens were a time when diabetes really started to weigh on me, and I didn't always feel equipped in dealing with the whole "I'm going to have this forever, probably" thing. Testing didn't happen often, taking insulin wasn't a consistently timed routine, and I somehow got to a place of thinking that I was the only one struggling so much to be that "good diabetic" I kept hearing so much about. 

It seems like it's that way for a lot of folks - the teens and early twenties can be some of the worst in terms of management - physically, emotionally, socially, everything. There's a bit of a gap in support systems for this age group.

That's where a new social networking site called 1 Sweet Life comes in:

1SweetLife.org is a new social networking site designed for teens with type 1 diabetes and their families. The founder, Brad Lowder, is the father of a type 1 teen and he is really passionate about creating a place for teens to feel normal and accepted.

A little about their vision:

Our vision is to motivate our members to take better care of themselves so they can lead healthier, happier, longer, and more fulfilled lives. We’ll use fun, creative strategies, and cutting-edge tools and technology to address common challenges.

Thanks to Mike Lawson for the heads up on this new community! Go check it out at www.1sweetlife.org and on Facebook.


Friday, March 2, 2012

Wrap-Up.

Today's post is a smattering of randomness, reaching many places on the emotional spectrum. Let it begin!
  • You may have noticed a new purple button over on the left side of my blog this morning. My friend Meri, who writes the blog Our Diabetic Life and is the mom of four boys - three of whom have type 1 diabetes - could use your help. Her husband was recently diagnosed with metastasized melanoma, with tumors on his brain, lugs, and in his abdomen. Please send any positive thoughts, healing vibes, prayer, or whatever you're comfortable with, their way. There is also a donation page set up, should you be so inclined, which can be found by visiting the Facebook page.
  • For those who don't follow me on Twitter or Facebook, you might not know that You Can Do This officially has a table at Friends For Life (!!!!!!) - you can check out the map here to see where I'll be! Thank you, again, to all who have offered their help in making it happen. 
  • Speaking of You Can Do This, I was interviewed by CallingAllTypes.com this week. You can read the interview here.
  • Either my body just laughed off the antibiotics I took last month, or I've developed a new sinus infection. It's been a month now. I'm done being "real people sick", okay?
  • And lastly, I came across what I think might be the most beautiful analogy I've ever heard regarding what online community support for PWDs is like. It was written by Babs on a post that Scott wrote recently.
I have this picture in my mind of this wide dirt road, where each of us is walking, toward the same goal. Some are walking ahead of me, some behind. Some are running, others are taking their time. I see you further up the road than me, looking back and waving, "hey, try this side of the road, it's less bumpy up here!" I don't know what my health would be like today without your guidance.
I think it's very much like that - we're all on the same road, and we're helping each other find the less bumpy ways of traveling it.

Wednesday, February 8, 2012

When Online Friends Go Offline.

Last weekend, I drove to Kansas City to spend some offline time with some of my online friends. (I think they're really just "friends" at this point, right?) Jess and Josh, Jacquie and Bob, Scott, Bob, C, Amanda and her mom, Brian, Sara, Barb and Jon, Charli and Tim, and I spent some time bowling, eating, laughing and learning, and I think all of our souls might feel a little more soothed because of it.





Several of us attended an event put on by the Kansas City JDRF chapter - typically called a "family retreat" (I went to a similar event in Omaha the weekend before). We heard from people like Dayton Coles, JDRF International Board Member; Patrick Clay, Pharm.D. (who is currently running a T1 clinical trial in KC); and Nan Borchardt, RD, LD, CDE (a veteran T1 herself). I picked up a few new things to try from Nan, like ensuring that your first few bites of breakfast are protein, not carbs (she says this helps to minimize the post-meal spike), making sure that you never give yourself two days in a row off from exercise (working on it!), and that those cardio workouts need to be at least 35 minutes long to burn enough calories for it to be worth it (already making that my new rule!).

There was so much more to the weekend than what I'll share here, but I can say that it was just the pick-me-up I needed. (And that this year's Friends For Life conference can't come soon enough - I'll see many of these people again, there!) Hearing other people's beeps, checking their Dexcom graphs while they sleep to determine if I needed to wake them up, witnessing (and then cheering) someone else putting a new sensor in their arm, comparing meters, defending other people's low blood sugar admissions... it's a nice feeling when all of that is "normal".

The drive home. You people are good for my soul AND my pancreas!

Wednesday, February 1, 2012

Best of the 'Betes Blogs: January Selections.

As I mentioned on Friday, I'm hosting the "Best of the 'Betes Blogs" carnival thingie today. (Carnival thingie! Technical term!) This round-up of posts exists with the idea that there are likely a whole slew of blogs and posts out there that some of you haven't discovered yet, and by pointing those out in an organized way each month, everyone's circles of support might expand a wee bit.

Nominations are in, and posts have been read. Thank you to everyone who sent in their selections!

And now, let the linkage begin:

Sometimes low blood sugars involve Yoda, gummy bears, and molasses legs. [Humor]

"I missed! I'll try again." [Vlog]

"The one thing you know right away is that it’s going to be tough to dress this up." [Photography]

Not talking is not the same thing as not caring. [Advocacy]

I think many of us might be happy to wear one of those vests, if this is what it involves. [Celebrity]

There's no time like the present to get things out in the open. [Non-D Post]

Searching for kindred souls. [Type 1]

Twitter, and the people who "get it". [Type 2]

"And then I learned." [Type Awesome]

"I cried, gasped, and winced. But it was what I needed."[Type 1.5/LADA]

Mistakes happen, and sometimes they involve an ambulance. [Mistake]

"Never abandon yourself." [Motivational]


Congratulations to everyone who was nominated - you had some great company! 


Next month's Best of the 'Betes Blogs will be hosted by Sue from RFamHere's Ramblings, so be sure to check in with her for February's results!

If you'd like to embed the BBB logo on your blog, here's the script. (Just replace all [ ] characters with < >, and you'll be golden.)

[div align="center"][a href="http://www.bestofthebetesblogs.com" target="_blank"][img src="http://momentsofwonderful.files.wordpress.com/2011/06/bbblogo-final-e1309479808835.png"][/a][/div]


Wednesday, December 14, 2011

Wordless Wednesday: This Appeared In My Mailbox.



Hashtag jewelry... now why didn't I include that in my "gifts for PWDs" list?

I am simply blown away. I am in the process of finding a chain to wear this beautiful, awesome pendant on, because I want it close to my heart (and I want people to ask about it, so I can tell them about how wonderful the DOC can be!).

Thank you friends - I absolutely adore it, and what a wonderful surprise it was! :)

Tuesday, November 8, 2011

Road Trip!

Aaron and I just got back from a five-day weekend in the great state of Indiana, as we attended our friends' wedding (Yay Erin and Adam!!) and got into some other antics. Thoughts and highlights:

  • Indiana - at least, the part we were in - is so scenic this time of year! I felt like I was living inside of a postcard photo. But did I think to take pictures of the scenery? I did not.
  • The wedding was beautiful, and I DID remember to take pictures of that.
  • I also made sure to snap a picture of this banner at the church. I know that our friends did not personally select this to adorn the church wall for their wedding, so I feel (relatively) safe in saying... wow. Red eyes, pale skin, and outstretched bloody hands? You decide what that means.
  • In the olden days before I had this certain type of diabetes-centric confidence, I would have balked at wearing a dress to a wedding. (Why? Because dresses don't generally have nifty pockets to house various diabetes paraphernalia. I felt condemned to pants.) This weekend was an occasion where I felt comfortable in my own skin, so to speak. My insulin pump was hooked onto the front of my bra, my Dexcom receiver was stuffed into the side, and my confidence was on the dance floor. And guess what? No one noticed the robot parts. (Well, they didn't notice until later in the evening when I made it a point to be all blatant and "look at how MacGyver I was tonight!" about it with some of the bridal party - whom I had met for the first time that weekend. There may have been some wine involved earlier in the night.)
  • Being in Indiana also meant that Aaron and I got to grab some lunch with some DOC friends - Cherise (and her daughter) and Mike (and his wife)! We decided that while we were together, we should do a Big Blue Test by testing, walking around downtown Indy's Monument Circle, and testing again. Want to know what the Big Blue Test is and how you can do it, too? Go check out http://www.bigbluetest.org/ for more info! (There also may be video evidence of our walk and results coming soon. Maybe.)
  • Indiana has both Dunkin' Donuts and Chick-Fil-A, which meant that Aaron and I both got to satisfy our less-than-healthy food cravings. We also tried Steak 'n Shake for the first time. We were less than impressed. 
  • Since Eli Lilly has a huge campus right by the part of downtown we stayed at, I was hoping to swing through and take a look. (Because that's what normal people do on vacation, right? Visit the pharmaceutical companies that make their life-saving medication?) Unfortunately, the Colts game foiled our plans and this is as close as I got. (Also, I have no idea why this bullet point is centered.)

  • The hotel we stayed in Saturday night is housed inside of Indianapolis' historic Union Station, which meant that the hotel actually had (non-working) train cars in it. What's that? You want to know if I was totally solemn and serious while standing on one of the train car's steps? 

In short: we had a great time. :)

Disclaimer: Lilly did not ask me to visit them or mention them in this post. I wanted to go because I'm a huge nerd who will make special travel plans to accomodate diabetes-centric tourist destinations. Like you do.

Friday, October 28, 2011

The Road Gets Easier.

Yesterday was a trip.

Every so often, one of you sends me a totally heartfelt email full of warm fuzzies. These notes tell me that something I did made a difference for you, or that you found a network of support through me. It makes my day to see a comment or a tweet of encouragement, but for someone to take the time (and emotional energy) to write such kind feedback in long form really gets me.

I read those emails over and over. I cherish the ever-living gusto out of those words. They lift my spirit and rejuvenate my creative juices. Those emails remind me that all of us sharing our stories with each other can do some real good in the world. They give me hope.

Yesterday, I got five of those emails.

Five.

I'm just... I don't... what?

Couple that with also receiving "real mail" from one of my favorite people (who also happens to have diabetes), and things just got ridiculous up in here.

Anyway, I'm a bit of an emotional mess over here as a result of this onslaught of positive feedback, and what follows below is a little of how I'm feeling. (Also, thanks for reading this stuff I write/draw. You all have helped me in ways I can never really explain.)

Ahem.

The Road Gets Easier. (A sort-of poem.)

What you do and what you say
Makes a difference. Every day.

We can lift others up; shine a light.
We encourage each other to keep up this fight.

We share what we know, and search out answers.
We give air hugs and make jokes about lancers.

We don't know if we'll live with this forever
But the road gets much easier when traveled together.

So thank you, for being that difference for me.
For shining that light; for helping me see

That while life with this condition can be so very tough
It brought all of you into my life, and for that, I can never be thankful enough.

 

Friday, October 21, 2011

DxONE.

Back in March of this year, I got an email from a guy named Dan. He reached out to me as a stay-at-home dad with a teenage son with type 1 who was finding a lot of support online through the blogs (like this one) and Facebook communities he was finding.

He also mentioned that he's a filmmaker and was in the beginning stages of creating a "narrative about type 1". Being a person who is not all that familiar with the movie world, I honestly wasn't quite sure what that meant. He was making a documentary? A short movie? An audio book? Well, okay.

Since that time we've exchanged some emails and I've more fully understood what he's doing, and guys? It's freaking awesome.

The narrative (short film) is called DxONE, and it's an approximately 18-minute peek into the world of a family dealing with a child with type 1, as told through the voices of a father and son. I know that the most cliché reaction to a movie is, "I laughed! I cried!"... but for real, I did. A film made by people who are personally living with the hardships and worries of the story they are telling are bound to hit the right chords.

Dan Masucci is hoping to get, in his words, a "grassroots effort" behind the film so that it can gain as much exposure (and do as much good) as possible. He let me take a sneak peek at an unfinished version of the film earlier this month, and answered some of my questions about the film this week. Here's what he had to say!

Kim: Hi Dan! Thanks for agreeing to answer some questions about your film. What is DxONE about, and what inspired you to tell this story?

Dan: My son Nicholas was diagnosed two and a half years ago with Type 1 Diabetes. Like most of us who have a loved one diagnosed, it came out of nowhere and was really shocking. As a storyteller, I knew almost immediately that I wanted to make a film about it, my first thought was that it would be cathartic. However, I was derailed by the event for nearly two years and even though I attempted to write about the experience, nothing solid came to me.

I don't think I've come to terms with it even now but earlier this year, the time was right to start working on the film in earnest. I believe what really helped me become ready was spending the last two years realizing how little people who don't have Type 1 in their lives know about this terrible disease and how dangerous it can be. I've had people suggest dietary changes for my son and others who told me how holistic remedies could cure it. People have heard of Type 2 Diabetes and think it's the same. I wanted to make a film that would help clear that up.

I know there are a number of books on the topic of Type 1 Diabetes but with a film, a group of viewers can sit down and digest it at the same time. Rather than make a film that was a documentary, I wanted to make a dramatic narrative, and tell a story so it would feel more personal. This film could be about any of us who have Type 1 Diabetes or have a loved one with Type 1.

Kim: I think that is part of why DxONE resonated for me - there were definitely lines in the film that I've either thought myself, or heard from others who care for people with diabetes. How much did your own experience helped you write this film?

Dan: I definitely wrote the script based on my own experiences with having a T1 son. I know that the experience isn't the same for every person so I wanted to touch on as many of the things that I believe are universal to the day to day experiences of families dealing with this. I could quite literally have made a mini-series about the topic but as a no budget indie filmmaker, I knew that I had the cherry pick what I believed was most important to help bring understanding and to make a film that other T1 families could relate to.

Kim: I know you've mentioned that you'd like to see a "grassroots effort" behind the film. What do you hope that DxONE can do for others - with diabetes and without?

Dan: It is my hope that DxONE can be used as a tool to raise awareness, help with fund raising (for appropriate organizations) and most importantly touch viewers. The films that I make tend to be family-themed dramas and my goal is always to get a strong emotional response. I believe that DxONE can do that whether the viewer has T1 in their lives or not. At its heart, the film is about the love that a family shares and that is something everyone can identify with.

I had someone in my own family who told me after Nicholas was diagnosed that "at least it isn't fatal" and I was thunderstruck by that comment. I wanted to be angry. I wanted to yell and tell them that they didn't know what they were talking about. I think there are a lot of people like that, people who don't know how threatening Type 1 Diabetes is. But, I didn't want to focus on the doom and gloom that you can easily fall into. I wanted the message of the film to be about hope.

Kim: I think you accomplished just that. How can people keep up with the film's progress, and what is the expected release date?

Dan: I'm currently in post-production for the film, finishing the edit. People can keep up with the film's progress by staying tuned to the Facebook fan page or at my personal website, http://www.fountainheadpictures.com/

I'm hoping to have the film completed by the end of 2011 or early 2012. In the past I've taken my films on the film festival circuit where they have screened collectively at more than 140 film festivals worldwide. I'd like to do the same with DxONE but I'm not yet sure about what other venues the film will find.

I know that I want to make DxONE accessible to the T1 community but to do that, the film really needs a grassroots movement behind it to help in that effort, so the more fans it gains, the better chance of it getting exposure. I'm hoping that this film is something that can help the T1 community use to get attention for government support as well. Below are some links where fans can follow the film and view video samples, behind the scenes clips and the trailer.

Facebook Fan Page:
http://www.facebook.com/pages/DxONE/170240229692963

------------------------------------------------------------------------------------------------------------

Speaking of video samples, here's a sample scene from the movie:




And lastly, here's a little bit more about Dan:

Dan Masucci lives in New York where he has been a stay-at-home father since his first child’s birth. In 2007, he made it into the top 1% of more than 12,000 directors competing for a place on the Steven Spielberg/FOX Reality show, "On The Lot".

The films Dan has written and directed have collectively had more than 140 film festival screenings worldwide and garnered more than 25 awards. For his short film "Letting Go", Dan was awarded the Idaho Film & Television Institute's IFTI Visionary Award.

Dan has been a "visiting expert" and panel speaker at national film festivals and other media related events. He is currently working on his first novel, a Young Adult thriller titled "Hollowville."


Edit: you may now also find Dan on Twitter (@DanMasucci).

Friday, October 14, 2011

Things I've Learned In The Past Week.

The name plate of a medical ID bracelet can make an excellent stand-in for the nickel you don't have when it comes time to change your insulin pump battery.



The DOC now has its own gang symbol. Don't know what it means? Hashtag it.

Sometimes people are brought into our lives - even if only on a brief plane ride - for a reason. It's up to us to make the most of the opportunity.

I was once again reminded of how full of good people this community is, and how welcomed, loved and appreciated we can make each other feel.

I learned that if a small army of people walk into a hospital all wearing the same t-shirt, you're going to get quite a reaction from the male nurse who watches you all walk by.

Four and a half minutes of video can make me laugh and cry and miss my "tour buddies" so, so much.


And I've learned that Billy would totally stick his face in a New-tell-uh jar if I would only let him.




Tuesday, October 11, 2011

Simonpalooza: Simon's Arrival.

Friday night was spent at Jess and her husband's house with snacks, cupcakes, a live Twitter feed of our weekend's hashtag on their TV (how nerdy are we?) and the creation of some welcome posters.

image credit (for all in this post): Sara
T-shirts were distributed and we made plans to greet Simon at the airport.

Have we mentioned that he thought just one person was coming to pick him up?

All twenty-something of us gathered at his gate, and tried to wait patiently. Our group attracted a bit of attention from both the TSA ("....Wow.") and fellow passengers. One gentleman that deplaned early saw our group and asked, "Are you all waiting for the Australian guy?" *cue affirmative squealing* "Oh, he's a GREAT guy. I sat next to him on the plane and heard his whole story. You're really going to like him. He's great."

It seemed like we waited hours, but it really was only minutes. We decided that he must have been the "nice guy" that was letting everyone else get off of the plane ahead of him. :)

And when he finally was within view... well... you need to see it for yourself, I think. Allison at DiabetesMine put together a video explaining what "Simonpalooza" was all about, and got Simon's arrival on film. The look on Simon's face when it registered that the big mob of people was for HIM... well, that one moment would have made the whole trip worth it.

It isn't that Simon is some sort of celebrity (though he most certainly is in our eyes), though the spectators at the airport probaby believed he was. (They also believed that Sara's marriage proposal sign was the real deal, until we told them it wasn't. Ha!) It's more that we all knew the sacrifice he'd made to come to the U.S. and what it meant to him. And what's even better is that it meant that to us, too. We lift each other up in this community; we cheer each other on; we share the weight of our difficulties and challenges. (Related: Simon is so fearlessly honest that I think his words took a few of us by surprise. Case in point: Simon telling Cherise what she and her work have meant to him. Sara caught part of that moment and posted a video today - it's very worth the watch.)

That undercurrent of understanding we all share amplified the emotion of the moments we had.

As Jess described in her vlog today: We're all with the band.



Monday, October 10, 2011

Simonpalooza: What You Do Matters.

I just got back from a large meet-up of wonderful DOC folks, which you may have seen on Twitter as "Simonpalooza". (Named because our friend Simon, who is from Australia, flew here for the specific purpose of meeting as many of his diabetes online community friends as he could - who we now just refer to as "friends".) I'll be recapping some of my favorite memories from the weekend over the next few days, and what the experience meant to so many of us.

It meant that around 30 of us (type 1, type 2, LADA, and our loved ones) made the trek to Kansas City to spend a couple of days with people we love (and prove to each other that we are real, actual people).

It meant that we all seemed to feel very okay about being stared at for things like pump tubing flapping in the breeze and matching t-shirts that no one else understood, because we understood it.

There we went, walking down the street. And we totally did get
the funniest looks from everyone we met.
It meant that each time someone asked about those t-shirts, our story became a little bit less about telling the truth and little more about fanning the flames of Blünt Lancet folklore.

The relatively short trip for us (less than five hours' drive) meant that Aaron finally got to meet some of the people I talk about all the time. (And they found out that he's a real person!)

It meant that we got to see, hear, and bear hug the people who so often can put words and hashtags to what we're feeling in our own lives - with diabetes and without.

It meant that I heard Simon's story straight from the man himself, and the memory of our conversation is something that I will remember and cherish always.

It meant that I cried. A whole lot.

It seems that things happen for a reason - the people you meet, the places you end up, the things you do. To borrow a phrase from someone wiser than I am, it's nearly impossible to connect the dots while looking forward - it's only when you look back on life that you can see the clear connections between decisions, circumstances and situations.

Sometimes you share your life with others (whether it is blogging, Twitter, online forums, whatever) and have no way to know if what you're doing is helping anyone. You share your experiences in the hopes that what you've been through resonates with someone; that maybe hearing your story will bring them some small amount of comfort. You hope that you can spark just a little glimmer of the thought, "I'm not alone after all".

This weekend provided multiple opportunities for folks to tell each other, face to face, that what they do matters - because they themselves were impacted by it. It's hard to wrap your head around the kind of impact simply know someone who is living and struggling and triumphing over the same thing that you are can have, but this weekend I had a chance to witness that very emotion in person.

It was beautiful, and I'm so thankful to know so many wonderful people. What you do matters - so please, keep doing it.




The video above was created by Sara, who so thoughtfully brought a video camera and wrangled us together to get these clips recorded. Please check in with her blog in the coming days to see the photos and videos she took of the weekend. There were a lot of great "moments" that she caught on film. :)

In order of video appearance (and who they are on Twitter):

Babs @babssoup
Jon @kssoup
Bob @rpederse
Cherise @Diabetic_Iz_Me
Nina (Cherise's mom)
Sara @saraknic
Jeff @jeffmather
Lisa (Jeff's wife)
Sarah Jane @SaJaBetes
Allison @AMBlass
Eric (Allison's husband)
Jess @jessmeandd
Josh @TypeBoring
Victoria @victoriacumbow
Melissa @sweetlyvoiced
Heather (and Becca!!) @auntlyh
Courtney @iamsquee
Kim @txtngmypancreas
Aaron (Kim's husband)
Mike @MHoskins2179
Scott J. @scottkjohnson
Kelly @kellyrawlings
Scott S. @Strangely_T1
Simon @STroyCrow